Dystonia treatment by Ray Sahelian, M.D.
Dystonia is a movement disorder in which sustained muscle contractions cause twisting and repetitive movements or abnormal postures This neurological disorder may be inherited or caused by physical trauma, CNS infection, or as a side effect to prescription or non-prescription drugs.
Dystonia questions
Q. I suffer with a deteriorating neurological condition named Axial Dystonia and
have lately become extremely desperate. I am aware that you are incredibly busy
but I would be so very grateful if you could find the time to help me in any way
as this disabling condition has torn my world apart and I am still
deteriorating. I would of course, be willing to pay for any advice you can offer
me and if there is any possibility of an appointment to see you. I will be as
brief as I can : In 1998, I suffered a Subarachnoid Haemorrhage with temporary
left-sided paralysis. With hard work and determination I made a full recovery,
and within ten months I was back to all my ' normal ' activities including
working full time. Two years later however I slowly developed the Neurological
condition Dystonia. If you are not familiar, Dystonia is a Neurological
involuntary movement disorder which affects approx 36,000 people in the UK. It
is a syndrome of spasms and sustained contractions resulting in abnormal
postures. Dystonia develops when there is a malfunction in the Basal Ganglia and
it is believed that the problem may lie in an area of the Basal Ganglia called
Globus Pallidus. The condition has similarities to Parkinsons Disease.
Unfortunately, my case is more rare as it affects the muscles in the trunk of my
body. It affects my walking ability and general co-ordination and over a period
of nearly eight years, I have become significantly disabled. There is currently
no cure and the drugs that I have tried have proved to be unsuccessful. My
Neurological Consultant at the National Hospital, Queens Square, London who I
see once every year has informed me that as my Dystonic condition is secondary
to the subarachnoid haemorrhage, it is unlikely that I will make a recovery and
may continue to deteriorate which is exactly what is happening. Up until now, I
have managed to 'stagger' around, but I cannot get much worse before I cannot
manage to do even that and I can't tell you how desperate I have become to find
something - anything to help me.
A. I am not familiar with a natural treatment for dystonia. You may
wish to visit this page and try the different herbs if your doctor approves as a
trial and error to see if anything helps. These herbs relax the central nervous
system and we have no idea if they would help but if you are desperate, they are
worth a try.